Job details

Associate Executive Director

The Cystic Fibrosis Foundation is a leading healthcare nonprofit organization like no other. For decades, we have been taking major steps and pioneering new ways to advance the mission to find a cure for cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

We are the global leader in the search for a cure for cystic fibrosis and nearly every CF drug and therapy available today was made possible because of CF Foundation support. We did this not only for the close to 40,000 people living in the U.S. with CF – and the estimated 105,000 people worldwide – but for the people with CF and families who have worked tirelessly to support the mission.

These achievements have required dedication and unwavering commitment from a talented team of CF Foundation employees. We promote an environment that attracts - and retains - a diverse group of talented people who are passionate about eradicating this disease . Join us and you will join an amazing team, devoted to our community, and our mission.

Position Description

The Cystic Fibrosis Foundation (CF Foundation) and its employees embrace their commitment to its core values. These core values are the pillars on which the CF Foundation stand and will continue to sustain us as we move forward.

Keep sight of what really matters: Our decisions are based on what is best for people with cystic fibrosis and their families.
Aspire for excellence in all we do: We take pride in our work. We are committed to continuous learning and improvement.
Stronger together: We collaborate and work together so that we can learn more and achieve more.
Innovate with courage: We embrace challenges. We reach beyond boundaries in pursuit of our vision.
Care about our people: We deeply care about each other and all who support our shared mission. We listen with respect. We support one another.

We are a nonprofit, donor-supported organization that has raised and invested billions of dollars to help develop cystic fibrosis therapies that have changed the lives of people with this disease. Nearly every CF medicine available today was made possible because of Foundation support.

POSITION SUMMARY:

The Associate Executive Director (AED) either assists the Executive Director and Area Director in the management of our large chapters, or serves as head of a branch office, reporting either to an Executive Director or Area Director. The AED provides leadership to the Chapter that facilitates a collaborative, donor centric culture among staff, as well as between staff and donors, volunteers, care center professionals, corporate sponsors, and national partners. The AED is also responsible for accurately communicating and raising awareness about CF and the work of the Cystic Fibrosis Foundation at events and other Foundation-sponsored programs. The AED also educates CF families, patients, caregivers and other community members with up-to-date information on research progress, access to healthcare, pending legislative issues on both a local and national level, and other services provided.

In addition, whether the AED is located in a large chapter or serves as head of a branch office determines the nature and level of specific responsibilities in areas listed below:

Oversees assigned staff to ensure fundraising growth, as well as strong financial and human resource management;
Assists with strategic planning and revenue planning for the chapter or branch office;
Develops and nurtures relationships with key volunteers, donors, and staff partners;
Acts as the Executive Director when the ED position is vacant.

In all aspects of their role, the Associate Executive Director strives to deliver quality results in a manner that is respectful and supportive of others and to help build a strong team environment that fosters creative and innovative ways to improve the lives of those with CF and their families.

ESSENTIAL DUTIES AND RESPONSIBILITIES:

Fundraising

Works closely and collaboratively with the Area Director, Executive Director, or Field Director to oversee the development of revenue and annual goals, and operational budgets.
Responsible for or assists in the achievement of chapter revenue.
Directs fundraising as determined by Executive Director or Field Director.
May directly manage a priority or signature chapter event and/or campaign.
May supervise development staff in the successful implementation of events within assigned campaigns.
Ensures overall profitability and productivity of chapter or branch office.
Recruits, cultivates, and nurtures corporate relationships including corporate sponsors.
Networks effectively with CF families, volunteers, donors and other community members.
Aids in the managing and stewarding of care center relationships.
Works collaboratively with the Executive Director to develop volunteer recruitment initiatives in the chapter to recruit new leadership including board members.
Plays leadership role in development of Individual Giving within the market.
Identifies, cultivates, solicits and stewards major gift donors and annual fund donors.
Helps ensure effective chapter operations including administrative systems and record keeping that are aligned with financial and accounting policies.
Investigates market potential, recommend and implement short and long-term goals.
Effectively resolves chapter issues with staff, volunteers, and donors.

Education/Service

Makes educational presentations at civic group meetings; participates in community and corporate employee health fairs.
Refers patients/families to CFF Compass (legal information hotline, patient assistance resource library and case management/technical assistance program), Walgreens CF Services, care centers and local agencies.
Communicates about CF Compass and its multifaceted service opportunities to key leaders, event participants, care team members and CF community members.
Promotes participation in clinical trials to patients and families.
Participates in CHC/CFC. Ensure staff provides patient packets to care centers with educational information; assist with family education days; CF Connect programs; make presentations at care center/hospital staff meetings.
Recommends potential Advocate chair and committee members to meet with legal officials at the state, county and city level(s) to the Public Policy department. Helps develop a local action plan; Assists with Teen Advocacy Day and March on the Hill representatives, state lobbying days, and Make Every Breath Count.
Communicates infection prevention and control policy, as well as legislative issues through volunteer network, Emma, and social media, i.e. FaceBook/Twitter.
Ensures that key mission messages are incorporated into Annual Volunteer Appreciation events.

Staff Management

Working collaboratively with Area Director, Executive Director, or Field Director to recruit, interview, hire, orient, mentor and train staff.
Models and ensures a collaborative, donor centric culture among staff, as well as between staff and donors, volunteers, Care Center professionals, corporate sponsors, and regional/national partners.
Models and ensures that the culture and values of the Cystic Fibrosis Foundation are reflected by all chapter and/or branch office staff.
Manages staffing needs and issues effectively and in a timely manner, involving Field Management and Human Resources as appropriate.
Conducts performance reviews and recommends raises in consultation with Executive Director or Field Director for chapter or branch office staff based on performance and available budget.
Encourage professional development and career advancement for staff as opportunities arise and based on available budget and resources.

Financial/Administrative

Works to mitigate organizational risk.
Encourages use of and adherence to chapter and campaign timelines.
Diligently ensures all chapter or branch office activities, operations, transactions, and communications are in line with audit and compliance requirements.
Supervises Development staff in the preparation of event forecasts to ensure accurate revenue forecasting and expense tracking.
Accurately forecasts revenue and tracks expenses for assigned events if applicable.
Prepares forms, materials and reports for assigned events if applicable and submits post-event follow up documentation in a timely manner.
Ensures staff are trained on all systems and procedures to ensure financial and accounting procedures are in line with Foundation requirements and best practices.

KNOWLEDGE, SKILLS AND ABILITIES:

Four-year college degree required.
Minimum of 8 years related non-profit experience and 2 years of supervisory experience.
Strong interpersonal skills (verbal and written).
Special event and individual giving experience including securing large gifts from Major Donors and Corporate Sponsors.
Ability to multi-task, prioritize and keep organized to ensure timely and accurate work.
Proficient in Microsoft Office including Outlook, Word, Excel and Access.
Initiative, follow-through, sound and accurate judgment with the ability to support and explain reasoning for decisions.
Strong professional ethics which include approaching others in a tactful manner.

REPORTING RELATIONSHIPS:

Reports to the Area Director.
Manages assigned chapter staff.

WORKING CONDITIONS:

Must have access to reliable transportation and ability to travel to meetings or events at different locations as necessary.
Work nights and weekends as necessary to attend meetings and events.
Use of computer required.
Sitting, bending, reaching, and walking.
Some heavy lifting may be required.
Use of personal smartphone required.

The above is intended to describe the general content of and requirements for the performance of this job. It is not to be construed as an exhaustive statement of essential functions, responsibilities or requirements.

New York residents: This role is based in Albany, NY. We offer a salary range of $77,600 - $97,000 commensurate with experience.

Total Rewards: The CF Foundation is committed to offering competitive compensation (base pay and incentive), benefits, and professional development opportunities that maximize our ability to recruit, retain, reward, and motivate a highly-qualified and diverse workforce. Our comprehensive benefits package includes medical, dental, and vision coverage; generous time-off and leave policies; a holistic well-being program; health savings and flexible spending accounts; employer-provided life and disability insurance; retirement savings benefits; and a variety of work-life benefits to support employees and their family members.

The CF Foundation is an equal opportunity employer that is committed to being an employer of choice, not just a good place to work, but a great and inclusive place to work. We strive to recruit and maintain a diverse workforce. Qualified applicants will receive consideration for employment without regard to race, physical or mental disability, color, religious creed, ancestry, national origin, religion, age, sex, marital status, genetic information or testing, gender identity and expression, sexual orientation or status as a Vietnam-era or special disabled veteran or any characteristic protected by law.

Reasonable Accommodations: The CF Foundation is committed to providing reasonable accommodations for qualified individuals with disabilities in our job application procedures. If you need assistance or would like to request an accommodation due to a disability, please contact us at HROps@cff.org.

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CEO of Cystic Fibrosis Foundation

Dr. Preston Campbell

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By Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation funds cystic fibrosis (CF) research and medical programs. Founded in 1955, the organization supports clinical trials and specialized health-care centers, provides grants for independent research, operates university ...

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FUNDING

Nonprofit

INDUSTRY

Grantmaking & Charitable Foundations

TEAM SIZE

501-1000

LOCATION

Hybrid, based in Bethesda, MD

DATE POSTED